About ERN LUNG
Expertise
For patients
Patient registry
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

News

ePAGs

Patient OrganizationePAG RepresentativeCore Network
Alpha-1 UK Support Group / Alpha-1 GlobalKaren O'HaraAATD
Longfonds, NetherlandsMarjo Poulissen

Edwin J. Brekelmans

Brigitte van Berkel
AATD
Alpha-1 Italia / Alpha-1 GlobalStefano GueriniAATD
Cystic Fibrosis Europe, BelgiumHilde De Keyser

Elise Lammertyn
CF
HALO vzw, BelgiumPatrick VandorpeCLAD
Deutsche Sarkoidose-Vereinigung e.V., GermanyBernd QuadderILD
European Idiopathic Pulmonary Fibrosis & Related Disorders Federation (EU-IPFF), BelgiumLiam GalvinILD
Irish Lung Fibrosis Association, IrelandLiam GalvinILD
Unione Trapiantati polmone di Padova, ItalyStefano PavanelloILD
Amici Contro la Sarcoidosi Italia Onlus, ItalyFilippo MartoneILD
The June Hancock Mesothelioma Research Fund, UKKate HillMSTO
Bronchiectasis Patient Advisory Group (ELF group), SpainMarta AlmagronCF-BE
Associazione italiana per la Sindrome da Ipoventilazione Centrale Congenita - Sindrome di Ondine (A.I.S.I.C.C.), ItalyAlessandro Carcano ORLD
Childhood Interstitial Lung Disease (chILD), UKCarlee GilbertORLD
Sarkoidose-Netzwerk e. V., Bonn, GermanyAngelika SteinwedeORLD
Lungenfibrose e.V, GermanyDagmar KauschkaORLD
KEKS eV - Esophageal atresia and diseased esophagus, GermanyAnke Widenmann-Grolig ORLD
Lungenfibrose Forum, AustriaJohann HochreiterORLD
Kartagener Syndrom und Primäre Ciliäre Dyskinesie e.V., GermanyBernhard RindlisbacherPCD
European Pulmonary Hypertension Association (PHA Europe), HungaryGergely Meszaros PH
HTAP Belgique - Association des patients souffrant d'HyperTension Artérielle Pulmonaire A.S.B.L., BelgiumLuc MatthysenPH
National Patients' Organisation, BulgariaNatalia MaevaPH
European Lung Foundation, UKPippa Powell

Jeanette Boyd
EURORDISMatt Bolz Johnson

Lenja Wiehe