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UID:46@ern-lung.eu
DTSTART;TZID=Europe/Berlin:20230612T140000
DTEND;TZID=Europe/Berlin:20230612T150000
DTSTAMP:20230530T092035Z
URL:https://ern-lung.eu/events/ern-biological-samples-in-rare-diseases-res
 earch-added-value-and-usefulness/
SUMMARY:ERN biological samples in Rare Diseases research: Added value and u
 sefulness (12 June)
DESCRIPTION:General information\nThe Rare disease (RD) field benefits from 
 national and international multidisciplinary collaborations to face the ch
 allenges in research. Access to infrastructures\, collaborative research a
 nd policy platforms\, virtual platforms for data integration are some exam
 ples of means to overcome bottlenecks for diagnosis and treatment of RD pa
 tients. Biosamples managing is not an exception. The scarcity of biosample
 s for every RD and the risk of knowledge siloing or information duplicatio
 n may be overcome by the strengthening of collaboration and dynamism of bi
 osamples’ circuits including participation of all the stakeholders\, to 
 shorten the way and time from bench to bedside.
ATTACH;FMTTYPE=image/jpeg:https://ern-lung.eu/wp-content/uploads/2023/05/E
 RN-biological-samples-in-Rare-Diseases-research-Added-value-and-usefulness
 .png
CATEGORIES:General
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