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TZID:Europe/Berlin
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BEGIN:VEVENT
UID:162@ern-lung.eu
DTSTART;TZID=Europe/Berlin:20240710T000000
DTEND;TZID=Europe/Berlin:20240710T143000
DTSTAMP:20240613T143941Z
URL:https://ern-lung.eu/events/eurordis-webinar-rare-barometer-survey-on-t
 he-impact-of-rare-diseases-on-everyday-life/
SUMMARY:EURORDIS Webinar: Rare Barometer survey on the impact of rare disea
 ses on everyday life
DESCRIPTION:On Wednesday 10 July\, Rare Barometer\, the global survey initi
 ative of EURORDIS – Rare Diseases Europe\, will launch a new survey on t
 he impact of rare diseases on everyday life.\n\nThe survey will be open t
 o all people living with any rare disease and their family members worldwi
 de and will be available in 25 languages\, from 10 July to 8 September.
ATTACH;FMTTYPE=image/jpeg:https://ern-lung.eu/wp-content/uploads/2023/05/e
 urordis_LOGO.png
CATEGORIES:PCD Core
LOCATION:https://www.eurordis.org/rare-barometer-survey-webinar/
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TZID:Europe/Berlin
X-LIC-LOCATION:Europe/Berlin
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DTSTART:20240331T030000
TZOFFSETFROM:+0100
TZOFFSETTO:+0200
TZNAME:CEST
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