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TZID:Europe/Berlin
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BEGIN:VEVENT
UID:45@ern-lung.eu
DTSTART;TZID=Europe/Berlin:20230531T140000
DTEND;TZID=Europe/Berlin:20230531T150000
DTSTAMP:20230525T140523Z
URL:https://ern-lung.eu/events/new-rare-barometer-survey-on-newborn-screen
 ing-31-may-online/
SUMMARY:New Rare Barometer survey on newborn screening (31 May\, online)
DESCRIPTION:In this webinar\, Jessie Dubief will introduce the new Rare Bar
 ometer survey on Newborn screening. What type of questions will be asked\,
  and how will the data be analysed? These are some of the questions that w
 ill be answered during the webinar. We will also look at the different res
 ources available for you to increase the participation in your country or 
 disease area\, and how you can use the results in your own advocacy effort
 s.
ATTACH;FMTTYPE=image/jpeg:https://ern-lung.eu/wp-content/uploads/2023/05/N
 ew-Rare-Barometer-Survey-2023.jpg
CATEGORIES:General
LOCATION:https://www.eurordis.org/new-rare-barometer-survey-on-newborn-scre
 ening/
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