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UID:47@ern-lung.eu
DTSTART;TZID=Europe/Berlin;VALUE=DATE:20230621
DTEND;TZID=Europe/Berlin;VALUE=DATE:20230624
DTSTAMP:20230530T092409Z
URL:https://ern-lung.eu/events/rare-diseases-training-for-pediatric-patien
 ts/
SUMMARY:Rare Diseases Training for pediatric patients (21-23 June)
DESCRIPTION:Are you an adolescent aged from 12 to 18 years old with an inte
 rest in health\, biomedical research\, healthcare\, and children rights?\n
 Are you a patient with a chronic rare disease willing to get the skills to
  shape the future of research making it more inclusive for younger people?
 \nIf yes\, this paediatric expert patients training workshop is for you!\n
 \nThe workshop\, devoted to 15 paediatric patients in Europe\, is organi
 sed by the TEDDY European Network of Excellence for Paediatric Research\,
  in collaboration with EURORDIS and the Sant Joan de Déu Research Foun
 dation in the framework of the European Joint Programme on Rare Diseases
  (EJP RD).\n\nThe EJP RD is an EU-funded project aimed at raising the leve
 l of knowledge and awareness on rare diseases (RD) research. It namely aim
 s at empowering patients and creating expert patients by providing trainin
 g materials\, workshops and courses on scientific innovation and research.
 \n\nThis year\, the paediatric training  workshop will take place in Bar
 celona\, Spain\, from Wednesday 21st to Friday 23rd June 2023.
ATTACH;FMTTYPE=image/jpeg:https://ern-lung.eu/wp-content/uploads/2023/05/P
 aediatric-Patients-EJP-RD.png
CATEGORIES:General
LOCATION:https://www.ejprarediseases.org/event/paediatric-expert-patients-t
 raining-workshop/
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