About ERN LUNG
Expertise
For patients
Patient registry
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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Our Mission

ERN-LUNG is a Network of European Healthcare Providers (HCPs) dedicated to ensuring and promoting excellence in care and research for the benefit of patients affected by rare respiratory diseases. Our vision is to be a European knowledge hub for rare respiratory diseases with the aim of decreasing morbidity and mortality from such diseases in people of all ages. It is a non-profit, international, professional, patient-centric and scientific network that is committed Europe-wide and globally to the prevention, diagnosis and treatment of rare respiratory diseases through patient care and advocacy, education and research. In keeping with these goals, ERN-LUNG interacts with both national and international organisations which have similar goals.

The Network’s current set up has evolved since its creation in 2017 and will continue to do so with better and more inclusive geographical coverage. In particular, ERN-LUNG looks forward to working closely with Member States where currently no member HCPs are present, in order to involve them as Affiliated Partners and to ensure that collaboration, information exchange, multidisciplinary research initiatives and any other activities undertaken within ERN-LUNG encompasses centres beyond its established full membership.

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In order to make this vision a reality, the 5-year plan of ERN-LUNG is aimed at fulfilling the following objectives:

1. Taking stock of existing expertise at European level in the area of rare respiratory diseases to assess gaps and identify solutions.

2. Improving cross-border collaborations for improved continuity of care and providing highly specialized patient-centred care in rare respiratory diseases.

3. Advancing innovation in medical science by reinforcing research, epidemiological surveillance like registries, clinical trials, and providing training for healthcare professionals.

4. Ensuring easy access to quality and accurate information on rare respiratory diseases by developing online and offline resources about diseases covered within ERN-LUNG.

5. Strengthening the skills, competencies and abilities of key ERN-LUNG target groups via annual training programs and continued educational activities targeted at HCPs and patients.

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