About ERN LUNG
Expertise
Monitoring System / Evaluation
For patients
Patient registry
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

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EMAIL-APPLICATION
ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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News

Patient Groups

Pippa Powell
Pippa Powell
European Lung Foundation
Organization
ELF - European Lung Foundation Favicon
Jeanette Boyd
European Lung Foundation
Organization
Matt-Bolz-Johnson-2023-1024x682
Matt Bolz-Johnson
EURORDIS
Organization
EU-IPFF Logo
Liam Galvin
EU-IPFF, Belgium and Irish Lung Fibrosis Association, Ireland
Organization
Gergely Meszaros
Gergely Meszaros
PHA Hungary
Organization
Karen O'Hara
Karen O’Hara
Alpha-1 UK Support Group / Alpha-1 Global​
Organization
Pavanello_PIC
Stefano Pavanello
Unione Trapiantati Polmone - Padova ODV
Organization
Bernd Quadder
Bernd Quadder
Deutsche Sarkoidose-Vereinigung e.V. (DSV)
Organization
Pisana ferrari_Pic
Pisana Ferrari
Alliance for Pulmonary Hypertension (AfPH)
Organization
Natalia Maeva
Natalia Maeva
President of Bulgarian society of patients with PH, Bulgaria
Organization
European Union Flag
Carlee Gilbert
ChILD EU, UK
Organization
Johann Hochreiter
Johann Hochreiter
Lungenfibrose Forum, Germany
Organization
European Union Flag
Patrick Vandorpe
HALOvzw, Belgium
Organization
Luc Matthysen
Luc Matthysen
Patient Association for Pulmonary Hypertension (HTAP)
Organization
European Union Flag
Edwin Brekelmans
Longfonds, Netherlands
Organization
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Hall Skaara
PHA Europe
Organization
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Angelika Steinwede
Sarkoidose-Netzwerk e. V., Bonn, Germany
Organization
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Petra Tempels
Kartagener Syndrom und Primäre Ciliäre Dyskinesie e.V., Germany
Organization
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Filippo Martone
Amici Contro la Sarcoidosi Italia Onlus, Italy
Organization
Anke Berlin
Anke Widenmann-Grolig
EAT Easophageal Atresia Global Support Groups E.V., Germany
Organization
European Union Flag
Enrico Bontempo
Alpha-1 Italia
Organization
Marjo Poulissen-Erinkveld
Marjo Poulissen-Erinkveld
Longfonds (Dutch Lung Foundation)
Organization
Alessandro Carcano
Alessandro Carcano
President of A.I.S.I.C.C., Italy
Organization
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Günter Wanke
Lungenfibrose Forum, Austria
Organization
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Anna Swenningsson
Swedish LAM Academy
Organization
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Leo Casimo
Sarcoidosis UK
Organization
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Dorrit Irene Novel
Schweizerische Sarkoidose-Vereinigung (SSARV -AScS)
Organization
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Elisabeth Jodlbauer-Riegler
CF Oberösterreich
Elisabeth Jodlbauer-Riegler
Organization
European Union Flag
Brigitte van Berkel
Longfonds, Netherlands
Organization
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Patricia Nogueira Fandino
Asociación Nacional de Enfermos de Sarcoidosis (ANES)
Organization
Hedberg_PIC
Tanja Hedberg​
Swedish PCD Patient Organisation
Organization
European Union Flag
Gepke Bakker
Sarcoïdose.nl
Organization
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Katja Schillhorn
Sarkoidose-Netzwerk e. V., Bonn, Germany
Organization
European Union Flag
B Milenkovic
Serbian Association of Sarcoidosis
Organization
How to become an ERN-LUNG patient representative
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ERN-LUNG Coordinating Center

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ERN-LUNG is one of the 24 European Reference Networks approved and supported by the European Commission.

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