About ERN LUNG
Expertise
OUR WORK
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

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EMAIL-APPLICATION
ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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NETWORK
News

Patient Resources

Patient Input in Task Forces
Through an initiative coordinated by the European Lung Foundation and the European Respiratory Society, patient input is sought at different stages of the production of guidelines and recommendations on the diagnosis, treatment or management of various lung conditions.
Get involved
Join Rare Barometer Voices
Rare Barometer Voices is a EURORDIS initiative that aims to make the voice of rare disease patients stronger. The objective is to transform your opinions and experiences about topics that directly affect you into figures and facts that can be shared with a wider public.
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Information factsheets
Access lung disease factsheets created by ELF and reviewed by members of ERS who are experts in the field, to know more about your lung condition.
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Search for a rare disease
Access a variety of services offered by Orphanet, the portal for rare diseases and orphan drugs, to gather quality, up-to-date information on rare diseases, orphan drugs, available diagnostic tests, ongoing research and more.
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Webinars on Sarcoidosis
Look into the webinars in 5 languages the ELF/ERS recently ran for patients with sarcoidosis to help them understand the recommendations in the recent ERS guideline published on sarcoidosis treatment.
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Bronchiectasis self-care guide
The ELF has released a new resource: the Bronchiectasis self-care guide, which has been written by people with bronchiectasis to help other people living with this condition.
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Find out more about available educational programmes here