The purpose of ERNs is to provide all patients with rare diseases better access to quality diagnosis, treatment and care. Patients are at the core of ERNs, and the cooperation between ERN Reference Centres will cause the expertise to travel, rather than the patients themselves across borders.
SEEKING EXPERT OPINION?
With the Online Expert Advice System (EXABO), patients and clinicians can address all kinds of questions relating to any rare disease of the respiratory system to ERN-LUNG experts who are specialized and experienced in this field. If the patient’s problem has not been addressed within the national part of EXABO, any doctor can ask for virtual consultation of ERN-LUNG reference centers via the Clinical Patient Management System (CPMS). This IT platform will enable a MultiDisciplinary Team (MDT) to discuss highly specialized patient cases in a secure environment. The resulting advice can then be directly referred back to the patient by their own treating physician.
