About ERN LUNG
Expertise
OUR WORK
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

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EMAIL-APPLICATION
ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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NETWORK
News

Meet the TEAM

ERN-Lung NETWORK COORDINATION TEAM (NCT)

COORDINATOR
Team Coordination

PROFESSOR TOF WAGNER

Coordinator - Registry and Biobanks Functional Committee Lead - Undiagnosed Patients WG Lead - JARDIN EJA Task Lead

VICE COORDINATOR
Vice Coordinator

PROFESSOR MARC HUMBERT

Vice Coordinator ERN-LUNG -Supporting Role for the Team Coordination - Strategy Working Group Lead - PH Core Network Lead

Project Manager
Network Coordination

Olivia Steinmann

Scientific Project Manager ERN-LUNG

Quality Management - Communication & Outreach - Research & Clinical Trials - Human Resources - Correspondent for ILD Core Network

Project Manager
Network Coordination

Elisabeth Humbert-Dorfmüller

Scientific Project Manager ERN-LUNG

Education & Training - Patient Involvement - Patient Reported Outcomes - CPMS- Correspondent for PH & ORLD Core Network

Project Manager
Network Coordination

Thazhone Stephy Varghese

Scientific Project Manager ERN-LUNG

Project Evaluation - Registries & Biobanks - Clinical Guidelines - Ethical Issues - EXABO - Governance body -  Correspondent for AATD & CLAD Core Network

Project Manager
Network Coordination

Lisa Rist

Scientific Project Manager ERN-LUNG (currently on maternity leave)

Undiagnosed Patient WG - JARDIN - LUNG-MAP - HCP Evaluation/Implementation 

Project Manager
Network Coordination

Gergely Meszaros

Scientific Project Manager ERN-LUNG

Go East Project - Patient representative

Project Manager
Network Coordination

Dorothea Berger

Project Manager ERN-LUNG

Finance and Controlling

Project Manager
Network Coordination

Nathalie Assenheimer

Scientific Project Manager ERN-LUNG

Cross Border Care - Financial management - Pregnancy WG - Correspondent for BE Core Network

Project Manager
Network Coordination

Dr. Janine Marx

Scientific Project Manager ERN-LUNG

LUNG-MAP - #meettheteam Project - DeRN-LUNGE - Undiagnosed Patients WG - Correspondent for MSTO Core Network

Project Manager
Network Coordination

Donata Eick

Scientific Project Manager ERN-LUNG

Quality Management - ERN Transition Working Group - Surveys -  Correspondent for PCD & SARC Core Network

Project Manager
Network Coordination

Dr. Hannah Scott

Scientific Project Manager ERN-LUNG

Joint Action JARDIN - Financial Management - Genetics WG -  correspondent for CF Core Network

Project Manager
Network Coordination

Dr. Kathryn Machray

Scientific Project Manager ERN-LUNG

Genetics WG, Patient Recorded Outcomes

Project Manager
Network Coordination

Juliane Schmitt

Scientific Project Manager ERN-LUNG

Financial Controlling/Management, LUNG-MAP, Monitoring 

Project Manager
Network Coordination

Catherine Dilchert

Scientific Project Manager ERN-LUNG

Financial Controlling/Management - Model Project: Genome Sequencing