ERN-LUNG
NEWSLETTER

ISSUE 36 - OCTOBER 2024

Welcome to the latest edition of our newsletter!

As we have entered the final months of the year, we´re excited to share some of our most recent achievements and updates with you and as ever, give you an overview of interesting events coming up.

We hope you enjoy this newsletter issue and in case you have any questions, please do not hesitate to contact the ERN-LUNG Network Coordination Team.

Your ERN-LUNG Network Coordination Team

Word from the NCT (Elisabeth Humbert-Dorfmüller)

The ERN-LUNG Academy has almost finished its second year and starts its campaign for the year 2025.
I am lucky enough to work together with Thomas Koudstaal, pulmonologist from Erasmus University Rotterdam, on its academic content. On the whole, 84 students have already benefitted from the numerous Webinars prepared by our highly specialized clinicians.
Most of the students were able to complete the curriculum by spending a week of observational stay in one of our many specialized centers.

They came from 16 EU countries, and from a few neighbouring countries (Ukraine, Serbia, etc.). They were incredibly happy to go and see how rare respiratory diseases are handled in Dublin, Aarhus, Lyon, Paris, Rotterdam, Barcelona, Bologna and many other of our centers. We had exclusively positive feedback, the only complaint being that 1 week of observational stay is probably a bit too short. However, if we want large participation, we will not be able to offer longer stays – budgetary limits have the last word here.

But first of all: thank you to those who provided us with this very valuable educational material.

Secondly: thank you to those who are never afraid of taking in our participants for a week for their practical stay, even though it means that you dedicate some of your time and you have to switch to English to be able to communicate!

And thirdly: please spread the word of the Academy around you. We are certain that young (or not so young) medical doctors, specialized nurses or physiotherapists of your departments can benefit from our curriculum. For that, just send around this link: https://ern-lung.eu/our-expertise/education/ern-lung-academy/ Applications for next year are accepted until Dec 1st.

In the next 2-3 years, we will almost certainly have to introduce an examination at the end of the curriculum, which is a requirement from the European Commission. We will have to think about the best way to do it, without scaring off future applicants, while keeping a good level of knowledge, adapted to the background of each participant.

Training and education remain a top priority at ERN-LUNG!

News & webinars
Events
British Thoracic Society – Improving Asthma Management 2024 (online)
15 October 2024, ONLINE event
Read more or book now!
European Academy of Pediatric Societies Congress
EAPS in Vienna, 17-20 October 2024.
Read more or book now!
EFGCP Better Medicines for Children Conference 2024
Event: Conference Type: F2F Language: English…
Read more or book now!
World Orphan Drug Congress Europe 2024 in Barcelona
The World Orphan Drug Congress Europe is the…
Read more or book now!
ERS Panel discussion: when ILDs get acute – knowns and unknowns
22 October, 2024 | Online 18:00–19:00 CEST…
Read more or book now!
ERDERA kick-off
ERDERA will hold a launch event next 28-29…
Read more or book now!
Childhood Bronchiectasis Question Time
This event will take place on Tuesday 29…
Read more or book now!
ELF Alpha-1 antitrypsin deficiency Patient Conference 2024
5 November 2024, 10:00 -16:00 CET
Read more or book now!
ERS webinar: Session 5: Obesity and pulmonary hypertension (6 November, 2024)
Topics and schedule: Session 1: PAH with…
Read more or book now!
ERS Course – Virtual academy of lung transplantation
7–8 November, 2024 | Online Organisers: F.…
Read more or book now!
c4c International Symposium 13-14 Nov 2024
The c4c International Symposium is a project…
Read more or book now!
EUPATI Fundamentals Patient Engagement Training for Industry & Academia Brussels, Belgium
Calling all industry and academia…
Read more or book now!
ERS course: Virtual academy of interstitial lung diseases
27–28 November, 2024 | Online Organisers: M.…
Read more or book now!
ICRI 2024 International Conference on Research Infrastructures
Hosted biennially, the International Conference…
Read more or book now!
WHAT WE NEED FROM YOU

Let us know if you are participating in any conference where you will be presenting ERN activities and results

Let us know if you have published anything recently (2024) so that it can be highlighted on the ERN-LUNG website; 

Any publications, clinical trials or guidelines arising from the collaborative work of ERN-LUNG members as major contributors  (at least 2 HCPs from at least 2 Member States) linked to ERN activities, are encouraged to mention ERNs either in the acknowledgement section or in the authors’ affiliation, using e.g.  This work is generated within the European Reference Network for Rare Respiratory Diseases (ERN-LUNG)” or “This work is supported by the ERN for Rare Respiratory Diseases and Complex Conditions (ERN-LUNG)”. If the support is not financial, “(non-financially)” can be added in brackets after the word “supported” for additional clarification. Please keep us informed of your research output so that we may publish it on our website.

FUNDING OPPORTUNITIES
ERN-LUNG Coordinating Center: University Hospital Frankfurt
Theodor-Stern-Kai 7 60596 Frankfurt am Main, Germany
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