The EJP RD program has officially ended on August 31, 2024. With the launch of ERDERA (European Rare Disease Research Alliance), however, the mission to improve the lives of millions of rare disease patients across Europe continues. The new partnership, championed by the European Union under Horizon
Europe and Members States, is led by the National Institute of Health and Medical Research – INSERM (France). With an estimated budget of 380 million euros, ERDERA aims to deliver concrete health benefits to rare disease patients in the next decade by advancing prevention, diagnosis and treatment research.
Better prevention, better diagnosis, better treatment. This is ERDERAยดs pledge to the over 30 million people living with a rare disease in Europe. ERDERA represents over 170 organisations from 37 countries working closely together with a shared vision of making Europe a world leader in rare diseases research and innovation to ultimately support concrete health benefits to rare diseases patients through improved prevention, diagnosis and treatment.
To present its ambition in the wider context of the EU rare diseases research strategy, ERDERA will hold a launch event next 28-29 October where representatives from the EC, the French Ministries of Health and Research, ERDERA leadership team and patient organisations will take the floor. The opening session schedule for 28 October between 2-3.30pm (CET), will be open to members of the press who can join online. More information will follow closer to the event.
