About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

ERN-LUNG Registry

European Reference Network – ERN-Lung Registry

This is a new registry which will be using the European Common data set plus health care data.

This registry is making use of the same minimal data set as all other registry applications but only stores data necessary for specific uses within ERN-LUNG for ERN-specific questions, i.e. health care utilization, cross border services, adherence to guidelines, etc.

Like in all registries it is of extreme importance to have patients involved in the development, governance and maintenance of such a registry.

If you are interested in contributing to this project – you do not need to have specific knowledge – fill out the contact form below: