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The last phase of the 5-Year-Evaluation is due and we are very proud to announce that all of our initial 50 members filled out the self-evaluation. 21 HCPs needed to hand in an Improvement Plan (IP) of which 16 were able to resolve the raised issues via the comment section. In the end, only 5 HCPs out of 50 needed to hand in an IP. Overall, we as NCT from ERN-LUNG are very proud of these numbers, which show that our members are very actively involved in our network and concerned with improving the structures for the future.
ERN-LUNG's healthcare has been recognized as patient-tailored, thanks to its patient engagement. Our focus on analysing patient participation in the network has yielded outstanding results. We aim to build on this success in the future. We also conduct numerous training and awareness activities to maintain high care standards.
In terms of improvement, we are working on a new assessment tool to track member activity and enhance the governance and coordination structure within ERN-LUNG. We have developed a large number of tools for education and training. In particular, through the European Respiratory Society (ERS), ERN-LUNG members have received education and training activities such as clinical training fellowships, e-learning courses (ERN-Lung Academy) and webinars. Despite that, the gap between Western and Eastern European Countries is not closed yet and may represent a barrier to the achievement of homogenous quality standards of care and needs to be addressed.
The overall result of ERN-LUNG has been satisfactory, and we are committed to working on the identified areas for improvement to strengthen our network. We want to say thank you to our members who invested many capacities and resources to take part in the evaluation process and highly value their efforts. Without them, this result would not have been possible. As we look ahead, we are planning to offer stronger support, in order to strengthen the membership and impact of their activity in the healthcare of rare lung diseases and will support the implementation of the IPs as well as overcoming the obstacles that lay ahead. |
