The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโs class, please send a letter of motivation to info@ern-lung.eu
The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.
EURORDIS has launched a new questionnaire to collect the experiences of people living with a rare disease who have experienced difficulties in accessing treatment. If you meet these criteria, you are encouraged to fill out the questionnaire by Monday 30 October. The questionnaire is available in 19 languages, and results will be analysed in order to facilitate solutions addressing access problems at both the national and European levels.
Take the questionnaire
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