The International Course โTraining for patient representatives and advocates on leadership and communication skillsโ is part of a series of training activities proposed by the EJP RD. EJP RD is a European Commission funded project (Grant Agreement 825575, 2019 โ 2023) with the goal to create a comprehensive sustainable ecosystem, allowing a virtuous circle between research, care and medical innovation.
This International course is part of Work Package 15 of the EJP RD, โCapacity building and training of patients and researchers in Rare Disease research and processโ, Task 15.3 โTraining for patient representatives and advocates on leadership and communication skillsโ. WP and Task Leader:ย EURORDISย -Rare Disease Europe, France.
The Course is a 2 days training preceded by preparatory pre-training elements. The edition of 2023 is organised byย MUG, Medical University of Gdaลsk, in close collaboration with WP15 and Task Leaderย EURORDISย -Rare Disease Europe, France.
The course aims to teach participants presentation, negotiation and leadership skills, through plenary presentations and interactive sessions, in order to improve their ability to communicate and represent needs in an assertive way, to influence important decisions and to guide the strategic decision-making, when engaging with healthcare providers and other rare disease stakeholders.
With support from ACCURARE Turkey and ISS Italy.