About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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RE(ACT) Congress 2027

DATE:  10 Mar 2027 – 12 Mar 2027
TIME: 0:00

March 10, 2027  March 12, 2027, hybrid event

Building on the success of its nine-edition legacy, the RE(ACT) Congress remains a premier hub for scientific innovation and tangible impact. By uniting global leaders, experts, and rising researchers across various disciplines, the event fosters the exchange of breakthrough findings and bold ideas to drive the future of rare disease policy and research.

Organised by the European Rare Diseases Research Alliance (ERDERA), the International Rare Diseases Research Consortium (IRDiRC), and BLACKSWAN Foundation, the RE(ACT) Congress embodies a shared commitment to overcoming rare disease challenges through collective actionopen collaboration, and knowledge-sharing.