About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

5-year evaluation of the ERNs

AMEQUIS Evaluation

5-year evaluation of the ERNs

The 5 year evaluation process of the ERNs has officially started following the signature of the contract with the independent evaluation body on 9 November. In 2023, the 5-year evaluation process with AMEQUIS will take place for all 24 ERNs and their respective healthcare providers, which were established during the initial call in 2017. The Independent Evaluation Body (IEB) is the consortium IDOM/ACSA, which will provide us pracical guidance during a webinar on 12 December. On that day, the self-assessment tool and the guide to the evaluation platform will also be made available. The evaluation calendar is demanding and for orientation you may wish to note that future steps will include: · the self-assessment of clinical units and of the ERNs (to be completed by 30 January); · on-site audits to a sample of clinical units (expected to take place from March to May); ERNs and HCPs draft evaluation reports prepared by the IEB (ERNs and HCPs will be asked to provide comments, if any, from April to June.

For sufficient preparation, the following documents are available: