About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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AfPH webinar on “Patient reported Outcome Measures in Pulmonary Hypertension Research and Care” (27 July)

AfPH webinar on "Patient reported Outcome Measures in Pulmonary"

Learning objectives of this webinar

  • Understand the pivotal role and significance of clinical guidelines, and gain insights into their development, review, and publication processes.
  • Discover the groundbreaking inclusion of patient advocates within the task force responsible for crafting the new guidelines.
  • Uncover the revolutionary concept of partnering with patients and shared decision making (SDM) in pulmonary hypertension care.
  • Delve into the current landscape of SDM in clinical practice. Are the times ripe for its implementation? Are patients and healthcare professionals prepared for this transformative approach? Unearth the challenges faced by both parties and explore strategies to overcome these barriers.
  • Recognise the indispensable role of patient engagement and empowerment in achieving effective shared decision making.
  • Discover how actively involving patients in their care journey leads to enhanced outcomes and patient satisfaction.
  • Explore best practices and innovative approaches that foster patient empowerment, encouraging a collaborative healthcare ecosystem.