BREATHeREGISTRY, previously known as the population registry, is a patient driven registry and provides the possibility to add patient recorded data. Thomas O.F. Wagner, MD, Professor of Internal medicine, medical director of the Frankfurt Reference Center for Rare Diseases (FRZSE) at the Universitätsklinikum Frankfurt, is the coordinator of the ERN-LUNG consortium, a group of the most renowned experts in that field in all European countries. He sees a great opportunity in the register: “Patient registries are important instruments for supporting clinical research in the field of rare diseases and thus improving healthcare in the long term. With the help of the European Population Registry, we are taking an important step towards better caring for patients in the future”.