About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

Call for members – new IRDiRC roadmap

The International Rare Diseases Research Consortium is launching a call for experts to support five new activities.

Check out the newly approved Task Forces and Working Group :

  • Facilitating the Development of Preventive Medicines at Scale for Rare Diseases.

More details on the expertsโ€™ profiles: here

  • Toward clarifications, improvement and international convergence in regulatory approvals of RD therapies with a focus on Advanced Therapy Medicinal Products.

More details on the expertsโ€™ profiles: here

  • Engagement of Young People Living with Rare Diseases in Therapy Development.

More details on the expertsโ€™ profiles: here

  • Stigma and Rare Diseases.

More details on the expertsโ€™ profiles: here

  • Bridging Diagnostics to Therapies and Care

More details on the expertsโ€™ profiles: here

How to Apply?โ€ฏ

If you are interested in taking part in any of these activities please send a CV, biosketch, and letter of motivation to the IRDiRC Scientific Secretariat before the 9th of February 2025.

scientific.secretariat[at]irdirc.org