The event of the call to action was one of the first meeting organized in the European Parliament and it was the very first and flagship event of the MEP Lung Health Group interest group PHA Europe is part of and collaborating with other lung disease patient associations and the European Respiratory Society (ERS).
The meeting was hosted by MEP Istvan Ujhelyi (Hungary) and chaired by Prof. Marc Humbert (ERS president). MEP Ujhelyiโs introductory speech was followed by Prof. Marion Delcroix lecture which covered the rare diseases, pulmonary hypertension and EU policies. Jose A. Valverde outlined the role of the European Commission on the field of health and outlined some aspects of the European Reference Networks (ERNs). These general presentations led to the introduction of the call to action by Gergely Meszaros who also covered the patient empowerment concept of the paper.
The next sessions followed the concept and main parts of the paper: Ass. Prof. Laurent Godinas talked about the importance of screening and awareness, while Prof. Adam Torbicki about access to treatment and special centres. Ass. Prof. Gabor Kovacs highlighted possible ways of research, including the use of artificial intelligence and the programme was closed by Eva Otter, president of PHA Europe, who talked about psychosocial support.
Read more about PHA Europeยดs flagship project Call to Action here: bit.ly/3L84fnF
