Theย International Course โTraining on strategies to foster solutions of undiagnosed rare disease casesโย is part of a series of training activities proposed by the EJP RD. EJP RD is a European Commission funded project (grant agreement No 825575) with the goal to create a comprehensive sustainable ecosystem, allowing a virtuous circle between research, care and medical innovation.
This International course is part of Work Package 14 of the EJP RD, โTraining on Data Management & Qualityโ; Task 14.3 โTraining on strategies to foster solutions of undiagnosed rare disease casesโ. WP and Task Leader: Dr. Claudio Carta, ISS.
Several initiatives have been undertaken at national and international level forย undiagnosed rare diseasesย aimed at identifying clinical pathways and innovative methods to reachย diagnosis. This course will illustrate methodologies and tools already used internationally and will provide participants with useful examples for the resolution of undiagnosed cases.
The course will provide participants, through the presentation of sample use cases that have long eluded diagnosis, with useful tools, instruments and knowledge on novel strategies to foster solutions of undiagnosed RD cases. Moreover, the course will facilitate networking among professionals involved in undiagnosed rare conditions.
Theย EJP RDย Training and Empowermentย programย aims to developย knowledge andย build capacityย ofย theย rare diseaseย (RD)ย research and care communityย through the deliveryย ofย trainingย programsย on a wide range of relevant topics therebyย providingย opportunities to a large panel of stakeholders.ย
Please check out the list ofย scheduledย trainings.ย
