Titled โExploring and Enhancing the Potential for ERN Registries to Advance Research in Rare and Paediatric Conditions,โ the ERICA-c4c joint workshop was held in Heidelberg on February 4-5, 2025, and aimed to unite ERN registry representatives, c4c partners, and other experts. The goal was to explore how existing ERN registries can drive research in rare and pediatric conditions. The workshop’s six focused sessions addressed a variety of key topics, including registry data, improving FAIRness, Real World Evidence, and cross-sector collaborations. This event marked a significant step forward in harnessing the potential of ERN registries to advance research.
