About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

ERN-LUNG Member Activity Performance Tool – LUNG-MAP

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At the end of January, we launched our new ERN-LUNG Member Activity Performance Tool – LUNG-MAP. The idea has been initiated by the results of the 5-Year-Evaluation. LUNG-MAP will facilitate knowledge about the level of participation of each member HCP in the different tasks carried out by the ERN. Designed to provide a comprehensive overview of our members’ activities, this tool will help us identify areas of strength, pinpoint gaps, and address weaknesses within our network. With this tool, we aim to implement specific actions to engage our members in different areas, which will strengthen the quality of our networkโ€™s outcomes.
The collection of yearly monitoring data indicators has been seamlessly integrated into LUNG-MAP. To streamline the process, both monitoring and LUNG-MAP questions have been incorporated into a single survey, mandatory to fill in for our (full)member HCPs and Affiliated Partners until the 6th of March. The survey shall only be filled in and submitted by one person from the member HCPs.
ERN-LUNG will leverage the LUNG-MAP data to establish a benchmarking system within the network. By assigning points in various categories, we aim to create a comprehensive overview of strengths and weaknesses. This invaluable insight will empower our Network Coordination Team to implement targeted actions for enhancing our members’ activities.
The Network Coordination Team (NCT) is looking forward to the results of LUNG-MAP and we are having high hopes to be able to strengthen our networks outcomes together with our members.