The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu
The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.
The registries of ERN-Lung has now sufficient patient data incorporated within them. Hence, it is now time to bring together a governance body that will govern these registeries. The deadline for sending the names of those interested was on 25th January 2024 for the HCPs and 31st January 2024 for the patient representatives. Currently, we have over 31 participants interested in being a part of the Governance body. Further information will follow in the following days.
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