The European Reference Network for Rare Respiratory Diseases (ERN-LUNG) has undergone a significant transformation. In a recent decision, the network’s registry has been named as ERN-LUNG PRIME (Patient Registry for Improving Medical Excellence). The new name was carefully selected through a voting system involving both the Governance body and the registry functional committee. This name reflects the registry´s committment to contribute to medical excellence and its ongoing efforts to enhance patient care and research in the field of rare respiratory diseases.
