The ERN-LUNG UnDiagnosed Patients Working Group (UDP-WG) has been selected as one of the winners of the “Patient Partnership Good Practice Challenge” by EURORDIS.
Within this working group, patients, clinicians and researchers are collaborating their expertise to develop an undiagnosed respiratory patient pathway. We want to thank EURORDIS for the opportunity to take part in this challenge and for all the support that our UDP-WG has received so far. We are dedicated to continuing this achievement and further strengthening patient partnership in our network.
Within our UnDiagnosed Patients Working Group (UDP-WG) we are in the midst of our co-design workshop series to develop the undiagnosed respiratory patient pathway interactively between patients and clinicians. We are looking forward to the outcomes of this practice and will keep you posted.
