The 1st Registries Governance Body meeting was held on 6th of March 2024. The main purpose of the meeting was to introduce the importance of the governance body and what it entails. This meeting provided the opportune moment to elect some members for the Governance Committee who will overlook into the main aspects of developing rules and SOPs.The elected committee consists of both patient representatives and Health care professionals. It has also been decided that henceforth the future governance body meetings shall take place during the ERN-Lung Annual Board Meetings.
