About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

EU-PFF Forum 2025

The European Pulmonary Fibrosis Federation held its Patient Advocacy Forum from 24th to 27th April in Frankfurt. The Forum offered a great variety of topics such as sessions on the diagnosis and treatment of pulmonary fibrosis as well as explored the pipeline and the role patients can play in the drug development process.

A speaker joined the sessions from the European Medicines Agency and an online presentation was held by the representative of the  European Commission on the new developments of health-technology assessment in the European Union.

ERN-Lung was introduced in details in a separate session and the patient advocates and physicians from the audience raised a couple of questions and expressed their interest in some of the initiatives  such as clinical trial network and the academy.

The meeting also provided a great opportunity to network with the ILD community and explore potential fields of collaboration.