About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

EURORDIS open academy schools 2025

The Open Academy Schools enter a new era under the European Rare Diseases Research Alliance (ERDERA) partnership. The Schools will now take place in Barcelona from 2-5 June 2025, lasting 4 days instead of the usual 5. This year, the program has been thoughtfully condensed, ensuring it remains equally engaging, interesting, and relevant.

The face-to-face intensive training of the Open Academy School on Medicines Research & Development and the Open Academy School on Scientific Innovation & Translational Research take place during the same days, incorporating parallel sessions, focusing on School-specific topics, and joint sessions focusing on patient engagement and leadership. Knowledge-sharing and networking opportunities are fostered throughout the training.

The programme will include one off-site visit to a research facility/hospital, lots of contact time with faculty and EURORDIS staff and the chance to network with fellow patient advocates and researchers, supporting each other in learning and practice during the training and beyond. Schools are delivered in English in a blended format, comprising e-learning modules, pre-training webinars and face-to-face intensive days.