The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu
The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.
The European Commission had proposed the establishment of an EU Disability Card, which represents a mutual recognition between Member States of a person´s disability status. This could be very interesting for people living with a rare disease within Europe, because many people who are living with a rare disease also live with a disability related to their rare disease.
Lean more about how EURORDIS has responded to the proposal and about the EU Disability Card here
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