The Guidelines Survey has concluded on the 24th of May 2024. We are immensely grateful for the time and effort you invested in providing your valuable insights and feedback.
Your input has been instrumental in assisting us in understanding various perspectives and will make a substantial contribution to the creation/ improvement of the guidelines. Nine Core Networks contributed to the gap analysis survey, demonstrating not just active enthusiasm but also a desire to adopt changes and enhance the treatment of rare respiratory diseases. We are currently in the process of meticulously reviewing all the responses and are committed to implementing improvements that reflect the needs and expectations in the area of rare respiratory diseases.