About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

Have Your Say: Commission launches consultation on patients’ rights in cross-border healthcare

European Reference Networks for rare, low-prevalence and complex diseases. Share. Care. Cure.

This year marks the tenth anniversary of the entry into force of the Directive 2011/24 on patient rights on cross-border healthcare. Under this Directive, EU nationals have the right to seek planned healthcare in another EU country. They can also claim reimbursement for treatment from their national health system or health insurance provider. This piece of legislation aims to establish the general framework for efficient and accessible cross-border healthcare, also backed up by a reimbursement scheme by the Member State of affiliation of the healthcare obtained abroad. Most importantly for us, the Directive is also the legal basis upon which the ERNs were created as means to enhance healthcare cooperation in the EU.

This tenth anniversary marks equally the start of the evaluation of the Directive on patient rights in cross-border healthcare, carried out by the European Commission. The evaluation in itself will concern the Directive in its entirety, including the approaches implemented by Member States in practice, how effectively these are working and what barriers patients still face seeking healthcare across borders. It also aims to show how the treatment and diagnosis of patients with rare and complex diseases have benefitted from the support of the ERNs scheme.

This is an opportunity to contribute with hands-on experience no later than 11 February 2021 and we will be welcoming all your suggestions as explained in the following newsletter of DG SANTE. If you believe that some objectives of ERNs need to be stressed further (like contribution to research, patient registries etc), please do not hesitate to raise your issues. For a reminder, Article 12 of the Directive on Cross-Border Healthcare describes the objectives of an ERN.