The Hungarian Respiratory Society held its bi-annual meeting on 13-16 May in Balatonfรผred, Hungary.
Thanks to the efforts of Prof. Ildiko Horvath, current Secretary General of the European Respiratory Society, a multistakeholder roundtable was organized to explore the difficulties of Alpha-1 Antitrypsin Deficiency (AATD) patients’ access to medication in Hungary. ERN-Lung was also invited to this close-door negotiation.
As it turned out from the talks the problem is not solely linked to reimbursement hurdles (it is also existing), but the identification of these patients in Hungary: while there is a good understanding of the COPD population a bigger number of AATD patients should be detected based on international prevelance numbers.
The parties agreed that further work is needed and agreed that a follow-up meeting will be necessary.
