About ERN LUNG
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ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

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ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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IRDiRC State of Play – now available!

IRDiRC - State of play July 2022

IRDiRC is pleased to announce that theย IRDiRCโ€˜sย Rare Diseases Research Initiativesย State of Play 2019-2021ย Reportย will be published on Tuesday, 05 July 2022.
This report is based onย scientific articles andย press releasesย published between 2019 and 2021; it seeks toย inform stakeholders and the rare diseases community about the developments and observed trends in the field of rare diseases research.
A chapter is dedicated to anย update on the global rare diseases research landscape for the past ten yearsย to celebrate IRDiRCโ€™s 10th anniversary.
More information here:ย https://irdirc.org/resources-2/state-of-play/

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