About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

Joint Romania-Hungary workshop on patients’ rights in cross-border healthcare and ERNs

As part of the assessment of the cross-border directive, the limited knowledge of the possibilities the EU citizens can live with turned out. To raise awareness and facilitate discussions series of regional workshops were organized. The penultimate one was a common Hungarian-Romanian event in Oradea, Romania on the 5th of February covered a wide range of topics such as patient rights, European Health Insurance Card (surprisingly half of the attendance does not EHIC), regional – cross-border collaborations between Hungarian and Romanian healthcare providers to better manage patients living close to the border, national networks, the JARDIN project and naturally European Reference Networks. The audience wittnessed an interesting map from Hungary which showed a colleration between the availability of ERN centres and the number of questions raised to the local helpline operated by the Hungarian branch of EURORDIS. It turned out that patients are more empowered in those regions where ERN centres are operated. The event also served as an excellent opportunity to network and find new contacts to these countries which play an important role in ERN-Lung’s Go East project.