Membership of ePAGs is open to all rare disease patient organisations (EURORDIS members and non-membersย based in the European Union). ePAGs can only benefit from the flow of ideas between a range of member organisations and advocates.
Are you interested in designating a patient representative to get involved in the European Reference Networks (ERNs) as an ePAG advocate? European Patient Advocacy Groups are open to rare disease patient organisations (EURORDIS members and non-members) operating in any ofย these European countries.
At the moment, we specially encourage applications from:
- Patient organisations fromย Eastern and Northern European countries;
- Patient organisations covering theย disease areasย included onย this list.
For more information on ERNs and the role of ePAG advocates you may watchย this videoย and read thisย short guide.
