About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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News

New EJPRD MOOC “Innovative Therapies and Personalized Medicine for Rare Diseases”

The Foundation For Rare Diseases (FFRD) has co-developed with the European Reference Network Transplant Child and CVBF (Consorzio per Valutazioni Biologiche e Farmacologiche/Clinical Validation from Biopharmaceutical Findings), a MOOC (Massive Open Online Course) titled  “Innovative Therapies and Personalized Medicine for Rare Diseases”.

This course has been developed in the context of the European Joint Programme for Rare Diseases EJPRD, a programme funded under the European Union’s Horizon 2020 research and innovation programme, aiming to create an effective rare diseases research ecosystem for progress, innovation and for the benefit of everyone with a rare disease

The course’s objectives are to:

  • Introduce the latest therapeutic treatments developed through medical research, such as gene therapy, protein-based treatments, regenerative medicine, cell therapy, and tissue engineering, and their potential applications in the field of rare diseases and discuss how these treatments offer unprecedented opportunities to treat, modify, reverse, or even cure diseases that were previously deemed incurable.
  • Define personalized medicine and explain how it differs from the traditional “one size fits all” approach.
  • Discuss the current real-world challenges in developing personalized treatments and ways to overcome them.

The MOOC will start on Monday July 8th, and enrollments is now open at: https://www.futurelearn.com/courses/innovative-therapies-and-personalised-medicine-for-rare-diseases/1 

The access to the content is free for the first 5 weeks after the enrollment.

This course is designed for anyone interested in knowing how recent advances in the medical research field can impact the treatment of rare disorders.

The MOOC will be particularly beneficial for medical students, researchers, patient advocacy groups, healthcare professionals, and biotech developers. However, anyone with a curiosity about science, medicine, and rare conditions is encouraged to participate.