EURORDIS, the umbrella patient association for rare diseases plays an important role in building and keeping together the rare disease patient community. One of the tools is the quarterly online meetings where patients/patient advocates from all the 24 ERNs have the opportunity to share their thoughts and report the accomplishments of their work within their respective network. This time, on the 1st of February, the participants had had the chance to share their yearly plans: ERN-Lung’s activities such as the undiagnosed patients and transplantation working groups, the registries, “Go East” project were welcomed with great interest.
