The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโs class, please send a letter of motivation to info@ern-lung.eu
The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.
Orphanet has implemented a new tool which can be used to search for a disease based on a clinical description for rare diseases and defined terms for clinical signs and symptoms (phenotypic abnormalities).
These descriptions are based on cases published in the biomedical literature. Terms used in the Human Phenotype Ontology (HPO) are used to describe the phenotypic abnormalities.
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