About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

RDI and partners call on UN Member States to realise UHC for the global rare disease community

On 21stย September,ย Rare Diseases International (RDI)ย partnered withย EURORDIS,ย ร…grenska, andย FEDERย to hold a formal side-event to the United Nations high-level meeting on universal health coverage (UHC) titled โ€œEngaging the UN System and Member States to Achieve UHC for PLWRDD: A Blueprint for Leaving No One Behind.โ€ The purpose of this event was to highlight the importance of including rare diseases in efforts to improve UHC, as it can only truly be universal if it meets the needs of the 300 million people living with rare diseases worldwide.