About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

The Pulmonary Hypertension Global Patient Survey: understanding the experiences and perspectives of patients

๐ŸŒย How does Geography and Aetiology impact Pulmonary Hypertension?
We are pleased to share a new study affiliated with ERN-LUNG highlighting findings from theย Pulmonary Hypertension Global Patient Survey (PH GPS).
Because the experience of living with PH varies greatly depending on where a patient lives and their specific diagnosis, this multidisciplinary study captures global patient perspectives on:
โœ… Healthcare provision
โœ… Self-monitoring
โœ… Research priorities
Collaboratively designed with patients and experts, these insights are vital to driving better, more personalized healthcare improvements worldwide.
๐Ÿ“–ย Read the full study here