The final activity report for the Together for Rare Diseases (Together4RD) initiative is now available, documenting the project’s efforts to facilitate collaboration between European Reference Networks (ERNs) and the pharmaceutical industry since 2022.
Key achievements highlighted in the report include:
- Pilot Research Projects:ย The successful implementation of three collaborative initiatives aimed at advancing research and innovation in specific rare diseases.ย
- The Together4RD Toolkit:ย The development of a publicly accessible resource, now integrated into theย ERDERA Innovation Management Toolbox, designed to guide future ERN-industry partnerships.ย
- Policy Advocacy:ย Continuous engagement with European stakeholders to prioritize rare disease research and establish sustainable frameworks for cross-sector cooperation.
- Examples of this work include theย Together4RD Policy Asks, and reports such as the September 2025 report โBoosting EU Competitiveness through Public-Private Partnerships in Rare Disease Research.โ
