About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

Workshop on Patients’ Rights and Rare Diseases in the European Union (27 February 2025)

The tenth workshop in Strasbourg, co-organized by the European Commission and EU countries, brought together over 300 participants, both in-person and online. The event, held in collaboration with French colleagues, aimed to raise awareness about cross-border healthcare, patients’ rights, and European Reference Networks (ERNs) for rare diseases. Attendees included policymakers, numerous patient representatives, national and local administration officials, healthcare professionals and providers, and health insurers.