About ERN LUNG
Expertise
patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

NETWORK
News

World Symposium on Pulmonary Hypertension, June 2024

The World Symposium on Pulmonary Hypertension (PH) is the biggest disease-specific scientific meeting held in every five years. The 7th symposium held in Barcelona welcomed more than 1600 physicians, researchers, nurses, representatives of the pharmaceutical companies and patient representatives during the last weekend of June.

The preparation for this event started well before when 124 task force members in 15 groups were working on the proceedings.

ERN-Lung was very well represented in the meeting: there was no single European member of the Organizing Committee and the Task Force on patient perspective who do not have ERN-Lung affiliation!

Following the opening ceremony, the presentation of the Patient Perspective Task Force set the scene and reminded the participants of the principle โ€œNothing about us without usโ€.

The 3-day conference covered many aspects of the disease including classification, diagnosis, treatment goals and algorithm, risk stratification and genetics. Special attention was paid to transplantation, disease management in special conditions (eg. pregnancy, climate change) and to various groups of patients, eg. pediatric population, PH with left heart and chronic lung diseases and chronic thromboembolic pulmonary hypertension (CTEPH).

The Symposium was a great success and a clear message how strongly the stakeholders are committed. We look forward to the 8th World Symposium and we do hope that we will witness even more advances!