About ERN LUNG
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patients
clinicians
ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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News

New cilia focus special magazines out now!

Inhale the future - Exhale the past - PCD Zilienfocus

Please help us put a face to the rare lung disease PCD. During the past two years of the pandemic, high-risk patients and their families have been faced with the problem of coping with their their already difficult daily lives.
Two people affected by the Kartagener Syndrome and Primary Ciliary Dyskinesia Association accompanied the members through this difficult time in a three-part magazine and together they managed this wonderful project. At the beginning of May, the magazine went to press collected in one issue and was distributed to members, outpatient clinics and rehab facilities alike. Now the issues are also available online as interactive PDFs on the association’s website.
Since the contents are also interesting for other patients (especially those with other respiratory problems), we now want to share it and make it known.

The three issues of the Cilia Focus Special on the Corona Pandemic are now publicly available. They are interactive PDFs, meaning there are clickable links, more or less visible, hidden throughout the issue. You will be redirected (if you are connected to the internet), you can read further information or jump to any article via the table of contents. Feel free to click through, have fun discovering!

Here you can download the Zilienfocus special on pandemic response:

Zilienfocus Spezial Teil 1 (Juni 2020)

Zilienfocus Spezial Teil 2 (Februar 2021)

Zilienfocus Spezial Teil 3 (Mai 2022)

Please click here for more information