Due to the ongoing war in Ukraine, many Ukrainian people have little or no access to medical care in Ukraine or are fleeing to EU countries, especially eastern countries, to settle. Many of these refugees have or will have health limitations and therefore require medical assistance. EU governments have made a clear commitment in recent days to provide adequate health care for these refugees, including for patients who suffer from chronic illnesses and therefore urgently need sufficient medical care. In solidarity with Ukraine and Ukrainian patients suffering rare lung diseases, please see the list below which includes resources and neighbouring countries which are willing to provide medical help for refugees who are affected by rare lung diseases. Cross-boder referrals and diagnosic advice can be provided to Ukrainians by ERN-LUNG centers located in border countries.
ERN-LUNG centers in Poland:
Instytut Gruลบlicy i Chorรณb Pลuc Warsaw (IGICHP)
ERN-LUNG centers in Hungary:
National Korรกnyi Institute of Pulmology
ERN-LUNG centers in Slovakia:
National Cardiovascular Institute
ERN-LUNG centers in Lithuania:
Vilnius University hospital Santaros Klinikos
Hospital of Lithuanian University of Health Sciences Kauno klinikos
The 24 ERNs for rare diseases have launched a dedicated support platform and social media campaign (#ERNcare4Ua) for Ukrainian refugees affected by a rare condition and seeking medical help and care.ย The dedicated website provides a contact point for each ERN, a list of member hospitals and useful links. For more information, please visit https://www.erncare4ua.com/
All 24 ERN Coordinators have prepared a STATEMENT indicating the support of people suffering Rare Diseases and Complex Conditions and who are affected by the war in Ukraine.
This page will be continously updated according to the development in Ukraine.