About ERN LUNG
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ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next year’s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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News

AfPH webinar on “Patient reported Outcome Measures in Pulmonary Hypertension Research and Care” (27 July)

DATE:  27 Jul 2023
TIME: 18:00 – 20:00

The AfPH is delighted to announce its second webinar in the six part series exploring the innovations introduced by the 2022 ESC/ERS clinical guidelines on pulmonary hypertension

During this webinar attendees will have the opportunity to hear directly from two members of the European Reference Network for Rare Lung Diseases (ERN-LUNG) who are actively engaged in discussions concerning the utilisation of Patient Reported Outcome Measures (PROMs)

Speakers:

  • Dr. Simon Gibbs, National Heart and Lung Institute, Imperial College, London, UK
  • Gergely Meszaros, Project Manager at ERN-LUNG

 

Moderator: Dr. Andreas Reimann, admedicum

Learning objectives

  • The current PROM tools and how they were developed
  • Why they should be included in routine patient care, particularly at PH centers.
  • Their potential use in clinical trials – including patient perspective in trial design
  • What is needed to improve current tools and develop future ones.

The webinar will be broadcast through the PH-KSP website, LinkedIn Live, and Facebook Live, ensuring widespread accessibility and participation. As we are committed to preserving and sharing the information delivered during this session the slides, recording and a comprehensive transcript will be made available, enabling individuals to revisit the content and share it with their networks.

We recognise the importance of overcoming language barriers, and therefore, we will provide translations, on request, making these resources accessible to individuals from diverse linguistic backgrounds. Contact us at this form to request a translation.

Further details and link to join the webinar will follow shortly.