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ERN-LUNG Academy

The ERN-LUNG Academy is a curriculum for medical staff at any stage of their career, who wishes to get a proof of knowledge on rare respiratory diseases. It consists of Webinars and eCases, but also includes on-site training in ERN-LUNG Centers. We call for applications from participants of EU-member States from September to November each year. Classes start in January. If you wish to apply for next yearโ€™s class, please send a letter of motivation to info@ern-lung.eu

ERN-LUNG Online advance system

The EXpert Advisory BOard (EXABO) is a pan-European internet platform, which has been developed in the context of ERN-LUNG in liaison with the Medical Informatics Group of University Hospital Frankfurt, to answer questions on all aspects of rare respiratory diseases. The platform is primarily aimed at patients and care team members but is openly accessible by anyone who wants to ask a related question.

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Drug-induced pulmonary hypertension symposium: Applying lessons learned from the aminorex epidemic.

DATE:ย  13 Apr 2023 – 14 Apr 2023
TIME: 8:00 – 17:00
Logo Stanford Medicine

2nd meeting of the International Collaborative. April 13-14, 2023 โ€ข Hoover Institution – David & Joan Traitel Building, Stanford, CA.

Pulmonary hypertension (PH) is a rare and fatal cardiopulmonary disease which disproportionately impacts women.ย  Despite the progress in the diagnosis, clinical care, and treatment of PH patients, unique etiological factors are still being discovered.ย  Iatrogenic forms of PH are one of theย leadingย butย under-appreciatedย causes of the disease in the modern era. The rationale for this symposium is to leverage subject-matter expertise from international academic centers and Stanford University, engage the broader academic communities, global organizations (World Health Organization, United States Food and Drug Administration, European Medicines Agency), and stake-holders (patients, industry partners, etc) to develop a deeper understanding of โ€œdrug induced pulmonary hypertensionโ€ and establish pharmacovigilance protocols for monitoring drug safety and rapid identification of PH in at-risk populations.